SUPPORTING
young people living with epilepsy
IMPROVING
the mental health of bereaved siblings and close friends
PROMOTING
awareness of SUDEP (Sudden Unexpected Death in EPilepsy)
APPLICATIONS ACCEPTED BETWEEN 01-10 EVERY MONTH
The number of applications we receive every week has increased significantly. Of course, we will continue to help as many families as limited funds allow, but while trying to keep up with this much increased demand we do need time and funds to process them all.
Until further notice, applications for funding will be open for the first 10 days of every month.
Thank you for your understanding.
Please note that applications for bereavement support are being accepted as usual.
Trustees needed to join our board to help develop our charity
We are looking for volunteers to help with our fundraising events and social activities for bereaved siblings and friends.
If anyone has a minibus and willing to drive us or loan it to us occasionally that would be great.
STOP PRESS
Read our latest news and events here
We are thrilled to announce that we have been allocated a silver bond for 2026, which guarantees us two places in the 2026, 2027, 2028, and 2029 London Marathons.
We have selected two of our many applicants to represent us in next year’s marathon. Thank you to all who applied, and dont forget we have places for the next 4 years.
Temporary Changes to our Funding
During these times, when raising funds is difficult for everyone, we need to reach as many young people as possible. So, we have agreed, for the time being, to restrict applications for funding, to the following monitors.
Medpage MP5V2 (night time monitor with camera)
Epimonitor (replacement for Embrace 2)
Alert IT Pulse Companion
Nightwatch
Safety Pillows.
We may consider other epilepsy monitors in exceptional circumstances.
Jon’s charity aims to help young people with epilepsy live safely and independently, and to make life a little easier for bereaved siblings and close friends. We rely on Fundraising events and donations to fund our support projects, if you would like to help us to help young people click the donate button below. 100% of the money we receive will be used to achieve our aims. More ways to help us out are on the “donate” page
Thank you on behalf of all the trustees.
People Reached
£ Raised
%
Equipment donated - % of target achieved in 2024
Get in touch Get Involved
Please don’t hesitate to get in touch. We will aim to respond within 24 hours.