young people living with epilepsy


the mental health of bereaved siblings and close friends


awareness of SUDEP (Sudden Unexpected Death in EPilepsy)

Trustees needed to join our board to help develop our charity

We are looking for volunteers to help with our fundraising events and social activities for bereaved siblings and friends.

If anyone has a minibus and willing to drive us or loan it to us occasionally that would be great.


Read our latest news and events here


We are happy to accept applications through the post. Unfortunately we cannot collect undelivered mail from the sorting office, or pay for postage. Letters with insufficient postage will be returned to sender by Royal Mail. To avoid any delay to the application process please ensure you check postage rates for your letters. Thank you.

Jon’s charity aims to help young people with epilepsy live safely and independently, and to make life a little easier for bereaved siblings and close friends. We rely on Fundraising events and donations to fund our support projects, if you would like to help us to help young people click the donate button below. 100% of the money we receive will be used to achieve our aims. More ways to help us out are on the “donate” page

Thank you on behalf of all the trustees.

People Reached

£ Raised


Equipment donated - % of target achieved 2023

Get in touch  Get Involved

Please don’t hesitate to get in touch. We will aim to respond within 24 hours.