SUPPORTING

young people living with epilepsy

IMPROVING

the mental health of bereaved siblings and close friends

PROMOTING

awareness of SUDEP (Sudden Unexpected Death in EPilepsy)

Trustees needed to join our board to help develop our charity

We are looking for volunteers to help with our fundraising events and social activities for bereaved siblings and friends.

If anyone has a minibus and willing to drive us or loan it to us occasionally that would be great.

STOP PRESS

Read our latest news and events here

 We have been allocated a Silver Bond

We are thrilled to announce that we have been allocated a silver bond for 2026. Which means that we are guaranteed 2 places in 4 London Marathons, in 2026, 2027,2028 and 2029. We will keep everyone updated on our social media. Get training!

Temporary Changes to our Funding

During these times, when raising funds is difficult for everyone, we need to reach as many young people as possible. So, we have agreed, for the time being, to restrict applications for funding, to the following monitors.

Medpage MP5V2 (night time monitor with camera)

Epimonitor (replacement for Embrace 2)

Safety Pillows.

We may consider other epilepsy monitors in exceptional circumstances.

Jon’s charity aims to help young people with epilepsy live safely and independently, and to make life a little easier for bereaved siblings and close friends. We rely on Fundraising events and donations to fund our support projects, if you would like to help us to help young people click the donate button below. 100% of the money we receive will be used to achieve our aims. More ways to help us out are on the “donate” page

Thank you on behalf of all the trustees.

People Reached

£ Raised

%

Equipment donated - % of target achieved in 2024

Get in touch  Get Involved

Please don’t hesitate to get in touch. We will aim to respond within 24 hours.