young people living with epilepsy


the mental health of bereaved siblings and close friends


awareness of SUDEP (Sudden Unexpected Death in EPilepsy)

Trustees needed to join our board to help develop our charity

We are looking for volunteers to help with our fundraising events and social activities for bereaved siblings and friends.

If anyone has a minibus and willing to drive us or loan it to us occasionally that would be great.


Read our latest news and events here

Headline Charity

We have been chosen as one of two Headline Charities to benefit from this amazing event. The Charity Football Tournament has been organised by HBL ASSOCIATES – Civil Engineering Manchester. 32 teams from across the construction industry will compete and all the money raised will go to charity. We will be there. Please help us raise vital funds. click here to donate to the event if you can.

Temporary Changes to our Funding

During these times, when raising funds is difficult for everyone, we need to reach as many young people as possible. So, we have agreed, for the time being, to restrict applications for funding, to the following monitors.

The Embrace 2,
Alert IT Pulse Companion,
Medpage MP5V2 and Safety Pillows.

Unfortunately, we can not consider funding for any other monitor until further notice.”

Jon’s charity aims to help young people with epilepsy live safely and independently, and to make life a little easier for bereaved siblings and close friends. We rely on Fundraising events and donations to fund our support projects, if you would like to help us to help young people click the donate button below. 100% of the money we receive will be used to achieve our aims. More ways to help us out are on the “donate” page

Thank you on behalf of all the trustees.

People Reached

£ Raised


Equipment donated - % of target achieved 2023

Get in touch  Get Involved

Please don’t hesitate to get in touch. We will aim to respond within 24 hours.